Other Actions You Can Take

The vast majority of us in the Lyme community are aware that there exists extreme controversy in regards to the most effective way to diagnose and/or treat Lyme Borreliosis. Most patients are keenly aware of how much better they feel after continued therapy for Borreliosis. We believe that in large part Dr. Jones is really being investigated because he diagnoses and treats Lyme based on his years of clinical experience and not relying on the IDSA rules. In fact, it appears that many medical boards around the country are attacking  Lyme physicians that treat longer term. This has to stop. Together we can put an end to this senseless mission.

1. You may write letters in support of Dr. Jones if your child has been treated by him.  It is important in all of your correspondence to be balanced, articulate and factual. Hostility though understandable will not help our case..

These letters (not emails) should go directly to him. Send all letters to:

Charles Ray Jones, MD 
Madison Towers 
111 Park Street, 1st Floor 
New Haven, CT 06511 

In these letters please describe your circumstances and how Dr. Jones has helped you. Tell them if your child was misdiagnosed by other doctors and if your child improved under Dr. Jones care. If he was compassionate, generous, and care, let them know.  If your child responded to longer term protocols, let them know.   Include comments about your child's health then compared to now.  It would be helpful to talk about your experience with other doctors but please do not mention names. (Remember that ANY LETTERS YOU WRITE MAY BECOME PART OF PUBLIC RECORD.)

2. If you live in Connecticut, contact the governor.  You may contact the governor via phone, letter or email. It is important that you alert the governor to the impending health crisis in Connecticut. Over 10,000 Lyme patients are at risk for losing their doctor. This is not a small thing. Specifically tell the governor there are two standards of care for Lyme and that you as a patient (or the parent of a patient) have a right to choose which one your child receives. If you write, attach a picture of your child (if he or she has Lyme disease ) to your letter. This is also a great time for you to contact your state legislators or the Attorney General.

Office of the Governor, State Capitol

Governor M. Jodi Rell 
210 Capitol Avenue 
Hartford, CT 06106  
Phone: 800-406-1527 or 860-566-4840 
Email: governor.Rell@po.state.ct.us 

3. If you live in Connecticut contact your state legislators or the attorney general.

You can search for your legislator by going to http://www.cga.ct.gov/maps/Townlist.asp. Select the town and you will find the info you need.

Attorney General's Office

Richard Blumenthal 
55 Elm Street 
Hartford, CT 06141-0120  
Phone: 860-808-5318 
FAX: 860-808-5387 
Email: attorney.general@po.state.ct.us

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